Provided by David Satcher, M.D., Ph.D.
Surgeon General of the United States of America
Chapter 2
Overview of Consumer and Family Movements
Self-Help Groups
Self-help refers to groups led by peers to promote mutual
support, education, and growth (Lefley, 1996). Self-help is predicated on the
belief that individuals who share the same health problem can help themselves
and each other to cope with their condition. The self-help approach enjoys a
long history, most notably with the formation of Alcoholics Anonymous in 1935
(IOM, 1990). Over time, the self-help approach has been brought to virtually
every conceivable health condition.
Since the 1970s, many mental health consumer groups emphasized self-help as well
as advocacy (Chamberlin, 1995), although to different degrees. Self-help for
recovering mental patients initially emphasized no involvement with mental
health professionals. Over time the numbers and types of self-help groups began
to flourish and more moderate viewpoints became represented. Self-help groups
assume three different postures toward health professionals: the separatist
model, the supportive model that allows professionals to aid in auxiliary roles,
and partnership models in which professionals act as leaders alongside patients
(Chamberlin, 1978; Emerick, 1990). The focus of groups varies, with some groups
united on the basis of diagnosis, such as Schizophrenics Anonymous and the
National Depressive and Manic-Depressive Association, whereas others are more
broad based.
Chamberlin’s influential book and another book by former patients, Reaching
Across (Zinman et al., 1987), explained to consumers how to form self-help
groups. These books also extended the concept of self-help more broadly into the
provision of consumer-run services as alternatives (as opposed to adjuncts) to
mental health treatment (Lefley, 1996).
Programs entirely run by consumers include drop-in centers, case management
programs, outreach programs, businesses, employment and housing programs, and
crisis services (Long & Van Tosh, 1988; National Resource Center on Homelessness
and Mental Illness, 1989; Van Tosh & del Vecchio, in press). Drop-in centers are
places for consumers to obtain social support and assistance with problems.
Although research is limited, the efficacy of consumer-run services is discussed
in Chapter 4.
Consumer positions also are being incorporated into more conventional mental
health services—as job coaches and case manager extenders, among others. The
rationale for employing consumers in service delivery—in consumer-run or
conventional programs—is to benefit those hired and those served. Consumers who
are hired obtain employment, enhance self-esteem, gain work experience and
skills, and sensitize other service providers to the needs of people with mental
disorders. Consumers who are served may be more receptive to care and have role
models engaged in their care (Mowbray et al., 1996).
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